Why I'm Launching Reposting My Blog (from 2011) Today?
Back in January of 2011 I was inspired to start a blog to help raise awareness. Following is a repost of that blog including a little of my daughter's and my journey toward a healthy gluten-free lifestyle. In 2012 my family and I took our passion to bring healthy options to gluten-free consumers to another level when we bought a 100 year-old building and renovated it into our Gluten-Free Prairie Bakery. Today we are selling all of our products, including oats, oat flour, brownie mix, pancake mix, all purpose flour blend on Amazon, throughout the state of Montana and in the National Parks as well. You can follow our Gluten-Free Prairie Journey on my new BLOG "Little House on the Gluten-Free Prairie" HERE. We also have an awesome FREE Monthly online Newsletter that has some great recipes and monthly deals on our Purity Protocol Oat Products.*(20% off our entire line during the month of May). Simply click SUBSCRIBE the Gluten-Free Prairie HOMEPAGE HERE
I have to start somewhere and 01.11.11 just seems like a really great place to start my blog.
My passion and ultimate goal is to raise awareness about Celiac Disease.
Seems like everyone is talking about going Gluten-Free these days. In fact, Gluten-Free is currently the #1 niche is the entire food industry…nationwide. Why? Besides Celiac Disease, there are many reasons for the decision to go Gluten-Free, and the numbers grow every day. Among the reasons are a serious weight loss program and a possible treatment for autism. But my focus is Celiac Disease. And, as my family knows, 1111 has great significance for us. So today is the day to launch the NotEvenACrumb Blog.
In this first post, I am assuming that you never heard of Celiac Disease. That way we can start at the beginning.
What is Celiac Disease?
First, the bad news:
- Celiac Disease is the #1 autoimmune disease in the United States. It is a genetic disorder, requiring a life-time commitment to a strict gluten-free diet. Ingestion of even a crumb of wheat, rye and/or barley can cause a severe reaction. Though the reasons are not fully understood, research shows that the numbers of affected American’s doubles every 20 years.
- There is no cure. No drug or pill. Ingestion of even a crumb of wheat, rye and/or barley can cause a severe reaction.
- Left untreated, related diseases include Type 1 Diabetes, Rheumatoid Arthritis, Osteoporosis, Thyroid Disease, and certain types of cancer.
- Symptoms may include: diarrhea, weight loss/gain, migraine headaches, anemia, and infertility.
The better news: The only “cure” is a lifelong commitment to a strict Gluten-Free diet.
The best news: Celiac is the only disease in the world COMPLETELY controlled by diet.
So, There has never been a better time to be Celiac!!
In 2011 it will only get better.
In 2009, 180 new GF products entered the marketplace. In 2010, General Mills alone certified over 300 products as Gluten-Free. In 2011 the Gluten-Free market is expected to be a 3 billion dollar industry.
The problem is that the average delay in diagnosis is 9 years, and is often misdiagnosed as IBS. The majority of Celiacs are diagnosed only after being told they have one of the secondary diseases. So awareness and early diagnosis are key.
And for the past 5 years I have been on a crusade to raise awareness and increase diagnosis, which will ultimately save lives.
Why the crusade?
5 years ago my daughter, Amy, was diagnosed with Celiac Disease. I was diagnosed shortly thereafter. Connecting the dots backwards, we now know that my mother, grandmother and aunts also had the most serious symptoms of Celiac Disease.
After being sickly most of her young life, Amy, was finally diagnosed in her early 20’s. The delay in diagnosis for both of us was over 10 years, which is typical for most Celiacs. This is a genetic disorder and although a simple blood or gene test is all that is needed, many Dr’s are reluctant to do the test. Possibly because there is no pill to prescribe? My mother died at age 62 from a Celiac-related disease – without ever being diagnosed. I watched my daughter suffer with Celiac related issues for most of her youth. Now on a Gluten-Free diet, my daughter and I are each living a normal healthy life. We have our lives back! And how different all of our lives might have been, if we only had the knowledge. Thus, early diagnosis has become a personal passion for me. So my goal is simply to help raise awareness and increase diagnosis. Get our kids ….and their grandmothers tested.
Currently my goal is to obtain a designation from the State of California declaring May as Celiac Awareness Month in California. Such a designation will help us shine a light on “the #1 disease that you’ve never heard of” , which will certainly result in more accurate diagnosis, ultimately saving lives and, of course, saving money on health care.
It is estimated that 1 in 133 Americans has Celiac Disease – shockingly almost 97% don’t even know it...yet.
And now you know why I call it: “the #1 disease you’ve never heard of”
If any of the symptoms sound familar for you or a family member, stay tuned. I'll share our jouney going Gluten-Free. My posts will also include lots of easy to digest solutions for living a Gluten-Free lifestyle:
1) How to get diagnosed. What to tell your doctor.
2) How to create a Gluten-Free kitchen - or create a safe space in a shared kitchen
3) Cooking Gluten-Free is easier than you think. I'll include links to some of the best GF cooking sites on the planet
4) Navigating the mine-field of your local supermaket aisles
5) Dining out: how to talk to restaurant staff
There's so much information out there. Future posts will provide links to support groups and other sites that focus on the latest information on Celiac Disease. There is a world-wide Celiac Community available to you, and the only thing they love more than sharing the latest Gluten-Free brownie recipe is sharing the lastest advances in research and tips on how to live a Gluten-Free lifestyle.
We'd all love to help you THINK OUTSIDE THE CRUMB
Thank you for reading my first post.
Could you have Celiac Disease?
Are You The One? Is the title of the Celiac Disease Foundation’s newest awareness campaign. The following is from their website: www.celiac.org
Celiac Disease can appear at any time in a person’s life. In adults, the disease can be triggered for the first time after surgery, viral infection, severe emotional stress, pregnancy or childbirth. CD is a multi-system, multi-symptom disorder. Symptoms vary and are not always gastrointestinal (GI). GI symptoms can often mimic other bowel disorders.
Infants, toddlers and young children with CD may often exhibit growth failure, vomiting, bloated abdomen, behavioral changes and failure to thrive.
CLASSIC SYMPTOMS MAY INCLUDE
- Abdominal cramping, intestinal gas
- Distention and bloating of the stomach
- Chronic diarrhea or constipation (or both)
- Steatorrhea – fatty stools
- Anemia – unexplained, due to folic acid, B12 or iron deficiency (or all)
- Unexplained weight loss with large appetite or weight gain
- Dental enamel defects
- Osteopenia, osteoporosis
- Bone or joint pain
- Fatigue, weakness and lack of energy
- Infertility – male/female
- Mouth ulcers
- Delayed puberty
- Tingling or numbness in hands or feet
- Migraine headaches
SOME LONG-TERM CONDITIONS THAT CAN RESULT FROM UNTREATED CD
- Iron deficiency anemia
- Early onset osteoporosis or osteopenia
- Vitamin K deficiency associated with risk for hemorrhaging
- Vitamin and mineral deficiencies
- Central and peripheral nervous system disorders - usually due to unsuspected nutrient deficiencies
- Pancreatic insufficiency
- Intestinal lymphomas and other GI cancers (malignancies)
- Gall bladder malfunction
- Neurological manifestations